Still on that boat…

Strawberry blonde in a dizzy world!

Yamas!

June25

Whoop whoop I made it! God only knows how as two days prior to leaving my Dr prescribed a drug to stop the shaking but it made me worse. My mum said I went into a trance and I  didn’t know where I was or even who my mum was – it was a proper trip but not at all enjoyable that’s for sure!

It was so amazing that I made it. It wasn’t looking too positive when during check in I had my head on a table in Costa Coffee doing deep breathing exercises. I looked like such a nutter, funnily enough I wasn’t asked to purchase a beverage. So when we got there it was such a miracle we totally embraced the Greek life style.

I even had a go myself. When the lady next to me asked me if I spoke French and I replied ‘un peu’ that was kind of the end of our deep and meaningful but we still had a nice dance.

It was hard at times as we were much more limited in what we could do in comparison to last year when I was doing much better. I did make it to the beach really early a couple of times to do yoga which made me really happy. Look the internet is always required (the sign in background) – hello Facebook lets show off that we are on holiday having fun 😉

The highlight of my Holiday was watching my other half trying to get into the sea with me. It was fairly wavy and a shingle beach so not the easiest to get in the sea for a swim. He was shouting ‘I’ve got soft feet’ for about half hour before finally getting in after several failed attempts.

I laughed so much I got a few good mouthfuls of salt water (probably served me right!). It still makes me laugh and that’s well needed now. I’ve started a new protocol and I want to vomit for about 80% of the day which is fun so I just think ‘shingle beach’ – I think it was one of those ‘had to be there’ moments 🙂

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) two and a half years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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