Still on that boat…

Strawberry blonde in a dizzy world!

The good, the bad and the crap petals!

February6

Having another interesting week. Still having insomnia; I bought some ‘Rescue Remedy Sledge Hammer Knock You Out Herbal Petals’ in my desperation. It advised 4 drops on the tongue before sleep – I was practically swigging the stuff at 4.30am. I feel I really am past petals, lavender oil and scented candles. I partly blame my consultant who had told me that he’s positive it’s not a case of IF I get better but WHEN I get better so I stupidly got over excited about all the things I’ll be able to do when I’m well again – it certainly didn’t aid sleep!

Other than that I’ve felt quite sick and headachy on the new tablets but I hoping that will wear off in the next few days. The vertigo has been a bit crappy but I put that down to the tiredness and I’m hoping it will settle when everything else does.

On the positive I’ve a friends wedding to look forward too. I just have to hope that I can fit into the old faithful blue dress ok. I’ve lost a bit of weight, I don’t know about some chicken fillets helping me out I think I’ll need two steroid pumped up turkeys to do the job! But it’s been a great excuse to scoff my face whenever I want (hmmm maybe that’s why I feel sick?). I’ve even been having a pint of Guinness at night to build me up, in a wine glass so it’s still ladylike 😉

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I went out to lunch with my mum to an outside cafe in the woods that’s local to me. My mum is really lovely and chats to anyone and I mean anyone, in fact they’re lucky if they can get a word in let alone get away! There was a man on the table next to us (singing) who you could just tell wanted a chat with anyone. He hit the jackpot with my mum! They had a good natter and then mum had to leave to answer a phone call. She retuned to find the man with his Bible out asking if he could put his hand on my head and pray for me saying that he could heal me. Awkward! Lovely guy but that’s not really up my street, we left him there humming away quite happily.

I went to the gym with my aunt and went to a Pilates session (essentially lying down in a different place, it’s great for me) whilst she worked out. I went to meet her and on seeing me she then shouted to the entire gym that she hadn’t been there for so long her progress card had been archived. I then pointed out she still had her iPod on. At least every member at the gym is now aware of her progress!

I’m a bit disappointed as I can’t make the yoga reunion. Last year I went on the most amazing yoga retreat in Sardinia where I think my stomach got the best workout you can get just from all the laughing. In one restaurant we laughed so hard we got asked to keep it down (which made us laugh more) and this was in an Italian restaurant! I made some amazing friends and my vertigo was the best it has ever been – I can’t wait to go back.

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I’m very excited as I’m going to go stay with a mate in Devon for a couple of weeks. It will give my poor mother a good break and it will give me a change of scene. I’m staying with a very good friend (and her rabbit) who is much more quirky than me so I’m sure we will have some great stories to add next week. I’m so excited I’ve started packing a week early (yes I’ve packed the polka dot bikini – you never know!), I feel like I’m going on holiday.

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So I just have to hope that things will settle down and that the journey won’t make me too ill. I’m staying positive from my boost of positivity prescribed by my consultant last week so I think it will be great. Just think of all those cream teas and ciders I can consume to fit into my blue dress. Hmmmm may pack the baggy tracky bottoms!

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4 Comments to

“The good, the bad and the crap petals!”

  1. Avatar February 6th, 2013 at 11:09 pm Snowy Says:

    Sorry, just cant get my head past the pumped up turkeys…!


  2. Avatar February 7th, 2013 at 11:48 am Susan Cartwright Says:

    Why oh why did I put that on there? That will teach me to blog after a glass of wine 😉


  3. Avatar February 7th, 2013 at 4:35 pm Becky Says:

    Like the pics! Hope you enjoy Devon and have a nice break x p.s. Have to meetup soon. We are in the red majorly at the mo but hopefully settle down after March and can come and see you? 🙂


  4. Avatar February 7th, 2013 at 6:09 pm Susan Cartwright Says:

    Cheers Becky, would love to meet up in March, you take care xx


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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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