Still on that boat…

Strawberry blonde in a dizzy world!

Sleeping Beauty (on the inside)

April16

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Yeah I look just like that in my checked flannelette Primark PJ’s 😉

Sorry, no blog entries for a while as things have been pretty awful. It’s difficult to make day after day in bed sound very exciting or funny when its simply terrible. I think (fingers crossed) I’m startling to pick myself up again, unfortunately there is no Prince Charming to save me from my nightmare. I am seeing my consultant in a couple of weeks, I guess he is a kind of hero in this story. Lets hope he has a good plan up his sleeve!

I got this get well soon card which kind of sums things up!

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I did manage to get out and go to a barn dance for a bit (just spectating of course). My mum helped organise it to raise funds to save the village green from development. I have never seen such a bunch of uncoordinated people in all my life and even in my majorly fed up state I couldn’t help but smile. There were women forgetting that they were taking the place of men and vica versa, people who had clearly never heard of the term clockwise and lots of crashing into each other – how an ambulance was not called was a miracle!

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Won a cracking prize on the raffle too, very seasonal!

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Lets hope things pick up soon or I may just be swigging the above for breakfast 😉

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4 Comments to

“Sleeping Beauty (on the inside)”

  1. Avatar April 17th, 2013 at 6:34 am Snowy Says:

    Glad you are feeling a bit better – just in time for your birthday! Have a good one and stay off the mulled wine, I’m sure that wont help!
  2. Avatar April 17th, 2013 at 9:18 am Susan Cartwright Says:

    Cheers I’ll try 😉
  3. Avatar April 23rd, 2013 at 4:21 am katy Says:

    gavin and stacey!!! epic!!!
  4. Avatar April 24th, 2013 at 1:28 pm Susan Cartwright Says:

    Tidy 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat