Still on that boat…

Strawberry blonde in a dizzy world!

And sleep…

May20

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I had an interesting night last night in the local bar whilst trying to use their wifi for my blog. I was so engrossed trying to fix a few problems (pretty unsuccessfully but I had a go) I was surprised when I was approached by someone. They wanted me to make their numbers up in a game of pool. I explained that I’d not played in years and even then I was pretty awful. We had fun and I was asked out by a Hungarian masseuse (that’s a new one). Having not been asked out in quite some time I panicked naturally assuming he was after my iPad or he was the local axe murderer. I politely declined. He also offered to show me around today which would have been nice but its hard enough trying to explain my illness without a language barrier – he may have got more than he bargained for when I’m lying the floor! Again I politely declined.

I really had to be careful. It’s difficult enough for a girl on their own without adding my illness to it. I stupidly hadn’t payed much attention to the hypnotist who was entertaining people for the evening until he headed in my direction. He tried to hypnotise me (I didn’t have much choice in the matter to be honest!). Poor guy had no chance I had a panic as soon as I’d closed my eyes. I was too busy thinking ‘I’m a girl on my own with a illness that leaves my very vulnerable with my eyes closed and my iPad in my bag with a guy trying to chat me up getting hypnotised’. Smart! Needless to say it didn’t work I was chanting ‘don’t sleep don’t sleep don’t sleep’ in my head. So if you click your fingers and I start walking around clucking like a chicken you will know why!

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The weather is pretty terrible. I never though I’d be so glad that dad had left behind his fleece I’m practically living in it! I’ve been sitting in the balcony with about 12 layers on and the fleece over my red polka dot bikini (ever the optimist!) and a pair of socks. I’m still the only person who has been swimming in the pool. Understandable as I had to have a 30 minute boiling shower just to get rid of the brain freeze yesterday. Fingers still crossed for better weather 😉

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6 Comments to

“And sleep…”

  1. Avatar May 21st, 2013 at 11:04 am Auntie Sue Says:

    Sounds a lot more fun than your average night out round here!!. Go girl!X


  2. Avatar May 21st, 2013 at 9:16 pm Maggie :) Says:

    don’t worry you know steve, he’s done just about everything and it looks like they need a lifeguard!!! xx


  3. Avatar May 22nd, 2013 at 5:32 pm woody Says:

    You’ve made me smile!!!!And I love the socks! Did Dad leave those behind too?


  4. Avatar May 22nd, 2013 at 7:47 pm Susan Cartwright Says:

    Ha ha you know what it would be so funny to get a hypnotist in the White Horse – half the clientele are almost asleep already!


  5. Avatar June 1st, 2013 at 1:07 pm Tim Blake Says:

    Surely a masseuse is used to people lying on the floor. Sounds like you’re made for each other! Looks like the weather is better in the Beditarranean (pun intended)


  6. Avatar June 3rd, 2013 at 7:11 pm Susan Cartwright Says:

    Very funny 😉


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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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