Still on that boat…

Strawberry blonde in a dizzy world!

Wedding bells and glitter balls

May8

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Yay got out of my PJ’s and put on my best dress, borrowed shoes and a matching handbag from my Auntie Jill (very handy having an Auntie who has lots of lovely shoes in my size) and headed to Nick and Jac’s wedding. It was a really beautiful day and it was really lovely to see old friends and catch up and even have a dance. The weather was a bit terrible – when I got to the reception I think it’s the first time in my life I wanted a hot cup of tea (decaf) rather than a glass of champagne 😉

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I have been going to the Visual Vertigo clinic. They seem to think they can help me with my vertigo so I’m giving the glitter ball a go. I managed three minutes (it felt like a lifetime) before collapsing in a heap. I did lie there wandering what on earth I was doing – it is like purposely making yourself really ill. I suppose once you have given the ‘purple ugg boot wearing Chinese medicine women’ (who insists on having a hug before I leave each session) and Barry the ‘psychic healer’ a go you may as well let the madness continue – what have I got to lose? (Well apart from my lunch and the rest of the day!)

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I have also seen my Consultant who increased my meds (yay more nausea) and had another MRI. I thought ‘Help’ by the Beatles was an interesting song choice to listen to when your stuck in a tube for half an hour but hey whatever floats your boat 😉

It’s great to finally get some good weather and sit out in the garden. I do have to add that as soon as my garden chair arrived from Amazon there has been a slight change in the weather! It’s a good job the dog wasn’t shirking on his guard dog duties – it’s a dogs life!

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I’m off to Spain next week with my Dad so I’m looking forwards to a change of scene and some tapas (I’m not expecting sunshine as the forecast is looking pretty bleak for as soon as we arrive – I’m not even taking my chair!). Updates coming if I can find wifi. Adios amigos 😉

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4 Comments to

“Wedding bells and glitter balls”

  1. Avatar May 9th, 2013 at 8:02 pm Emma Says:

    Nice to see you out and about – have fun in Spain! I hope sangria isn’t on your ‘restricted foods’ list! X
  2. Avatar May 11th, 2013 at 4:19 pm Susan Cartwright Says:

    Thanks Emma – kinda thinking bugger the restricted list for all the good it’s done. I’m sure a nice glass of sangria will work wonders! Hope all’s good with you and the chickens? 😉
  3. Avatar May 15th, 2013 at 8:38 am Snowy Says:

    Nice dress! Must be difficult to subject yourself to glitter ball on purpose! Hope repercussions are not too severe! Have a relaxing time in Spain.
  4. Avatar May 18th, 2013 at 5:25 pm Susan Cartwright Says:

    Cheers Reuben you have no idea, still not over it – the thought about doing five more weeks of it doesn’t exactly fill me with joy! Lets hope it’s worth it in the long run. A least o have two weeks off now 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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