Still on that boat…

Strawberry blonde in a dizzy world!

Ups and downs

August20

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Well things have been a bit up and down this week in so many ways. Good days followed by bad days. Lovely moments which then crash and burn. The feeling like I’m literally going up and down as if on a boat in a storm which is how I’m feeling as I’m writing this. God I hope we get to port soon!

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I went for a lovely picnic with my Father at Ivinghoe Beacon. It was beautiful, peaceful and a perfect opportunity for a good chat and a catch up. It was all going swimmingly until his suggestion that I get a caravan at the bottom of my Mothers garden to give me a bit of independence – not one of his better ideas. I was literally speechless!

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Don’t worry, if that time comes when he loses all his independence and really needs me I’ve got his place reserved at ‘ I’ve Sat in my Own Urine for Three Days but I’m Happy About it Because I’m Eating Blamange Again Nursing Home’ – what goes around comes around 😉

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Fortunately I was reminded that I have some good friends. Yes, I guessed who sent the anonymously sent Furniture and Cabinet Making magazine straight away (it’s actually more interesting than it sounds). He clearly has a direct line to my Father for a little renovation work on the caravan!

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It has also been really helpful to get support from fellow MAV sufferers – I think it really helps knowing I’m not alone in going through these ridiculous debilitating symptoms, thank you 🙂

It is so frustrating that I can do 40 lengths in the pool with no difficulty but a trip to Boots floors me for the rest of the day. This little old lady asked my for my help to find a lipstick for her and I couldn’t say no. It was really hard for me and made me feel quite ill, I bet she would feel terrible if she realised. I found it though!

Oh well, at least there is always Mary Berry (I’m not even supposed to eat this but bugger the MAV diet!)

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Still, better than my Mothers effort 😉

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4 Comments to

“Ups and downs”

  1. Avatar August 20th, 2013 at 6:16 pm Emma Says:

    Ha Reuben with the mags I guess!! Maybe a new hobby for you Sues?! X
  2. Avatar August 21st, 2013 at 2:53 pm Susan Cartwright Says:

    Ha ha yes err maybe (I can’t quite see that happening!) How are things with you Emma, hope you are really well xx
  3. Avatar August 23rd, 2013 at 7:13 am Snowy Says:

    I’m still struggling to stop looking at the things your mum is holding – are they really cakes?? Or carbon dated tree segments? You should be on the bakeoff! I guess you must be watching it!
  4. Avatar August 23rd, 2013 at 7:45 am Susan Cartwright Says:

    Oh I forgot that was back on brilliant! Cheers 🙂

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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