Still on that boat…

Strawberry blonde in a dizzy world!

Not just a frozen forehead!

January12

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Well it’s been over three weeks now since the Botox treatment and still no change (not that I’m getting inpatient or anything!). In my Neurologist’s experience if people are going to respond it will be within two to three weeks. Frustrated is not a strong enough word! I did have a moment the other day when gravel didn’t make me want to pass out or vomit so I did get quite excited but that was followed by two days in bed – bit of a bummer! My insomnia is back so I’m so exhausted during the day I wouldn’t even know if it was working or not, it’s like I’m sabotaging myself!

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I have managed to do some baking which has been a good distraction. I’m loving sweet stuff at the moment. I don’t think it’s helping my mum’s boyfriend’s diet though 😉

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I have also done some swimming which I absolutely love. I get very annoyed this time of year as it gets full with people starting new years resolutions – don’t they know it’s my personal pool? Although I got there the other day and it was empty apart from a man getting out wearing a wetsuit! The heater had broken and it was a tad chilly. Because I’d driven all that way there was no way I wasn’t getting in so I had the entire pool to myself which was great. I then sat in the sauna for three days trying to get rid of the brain freeze. Maybe the submersion in cold water will do something to my mental brain and fix me – you never know? Do you think I’m getting a bit desperate? 😉

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2 Comments to

“Not just a frozen forehead!”

  1. Avatar February 5th, 2014 at 7:24 am Snowy Says:

    Sorry the Botox didn’t work! What a bummer huh. Least you have yummy cakes to eat!
  2. Avatar February 6th, 2014 at 1:29 pm Susan Cartwright Says:

    Yes, if all else fails there is always cake 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat