Still on that boat…

Strawberry blonde in a dizzy world!

Woo hoo!

January21

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Finally I have some good news and it’s about time too! My family have decided that living back at home isn’t really helping me so we are going to rent a little place in the village for a few months. I’m so excited I can hardly sleep (for a change!).

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I think it will be amazing to try and get some independence back and try and live a bit more of a normal life. I’m sure I will still have days when I may need help but I won’t know unless I give it a go.

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We have applied for a place and I’m just hoping that it all goes through ok so fingers crossed. I can hardly believe that something positive is happening in my life. The only problem is that the only bit of furniture I own is my garden chair – eBay here I come!

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One Comment to

“Woo hoo!”

  1. Avatar January 22nd, 2014 at 12:59 pm Susan Cartwright Says:

    Bloomin Botox still not working though 🙁

Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat