Still on that boat…

Strawberry blonde in a dizzy world!

Long time no see!

July10

Sorry I’ve been a bit quiet. Unfortunately it’s not because the Botox has performed miracles and I’ve been to busy partying and travelling the world to keep up my blog! To be honest, it’s been a little depressing even contemplating doing my blog as I stupidly envisaged it being a documentation of me gradually improving when the reality is quite the opposite.

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So, I’ve had some highlights – Soph and Hayden’s wedding, my sister and her boyfriend over from Australia, Karl and Alice from New Zealand and the yoga girls coming to stay (More entries to come on those soon!). I’ve not had a very good time since the second round of Botox. It made me so sick I tore a ligament in my spine and had a very fun afternoon passed out on the bathroom floor with my poor mother. I’d collapsed against the door so my mum couldn’t get out to A) turn off dinner that was cooking or B) get any help. It was almost funny. I then spent the next few weeks in (even more of) a drug induced haze struggling somewhat as the only thing that eased the pain (apart from gallons of Deep Heat) was walking. I could only walk a very short distance because the vertigo was so awful so it made for an interesting time. Honestly, someone up there is having a really good laugh!

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So things are gradually returning to baseline and I’m due to have a Greater Occipital Nerve block done at the end of the month – who knows what that will do to me but I guess I just have to keep hoping something positive will eventually happen. I’m due some luck at some point, and yes, I have considered starting to buy lottery tickets.

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I’m very lucky I have such supportive family and friends, they truly are amazing. I tried to make it to the village carnival last weekend and ended up passed out on the floor in a puddle – not my most glamorous moment! Once we’d convinced all the bystanders that I didn’t need the St John’s Ambulance I managed to get myself into a nearby bus shelter. My family had all rallied round at this point and as I couldn’t move far they all joined me in the bus shelter with drinks from the local pub – you have to laugh!

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My sister got caught trying to leave the pub with two pints of IPA and a GnT. When asked where she was going she explained being back in the village she was reliving her youth by getting drunk in the bus shelter. I think they believed her too!

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Thank goodness they help me to see the funny side 😉

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2 Comments to

“Long time no see!”

  1. Avatar July 11th, 2014 at 10:03 pm Snowy Says:

    What are family and friends for if not to have a pint with you in a bus shelter! You deserve a lifetime of good luck – lets hope you get it with the next treatment!


  2. Avatar July 12th, 2014 at 10:33 am Susan Cartwright Says:

    Awww cheers Reuben 🙂


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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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