Still on that boat…

Strawberry blonde in a dizzy world!

Here we go again!

August12

The nerve block was more fun and games (I’m such a lucky girl!). The journey to Liverpool was an absolute pleasure with the usual motorway services with the toilets MILES away topped off nicely by staying at a hotel with the world’s most vertigo unfriendly carpet. It was flippin everywhere. When I realised my room was at the end of the ‘Vertigo Corridor From Hell’ I almost just set up camp where I stood!

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Apparently it can take a couple of weeks to work and it’s now been about that and surprise surprise its made not a jot of difference. I’m also now being treated for suspected Lyme Disease which is just bizarre. I can’t really get my head around how my whole life has been shattered and it could all be down to something as simple as a tick bite – it’s crazy. What’s also nuts is going to the Hospital of Tropical Medicine hoping that you have some nasty infection as anything is preferable to what I have been (unsuccessfully) treated for. I’m so exhausted by all this!

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My sister has now gone back to Australia which is sad. Before she went we had a really fun day at Champneys (cheers Mary and Andrew!). There was no alcohol at the bar (shock horror) so we were a little bit naughty and snuck in the hard stuff and had a rather nice errr ‘detox cocktail’ at lunchtime. Rav from Crime Watch and Strictly Come Dancing was there which was a nice little treat, he so rocked a white towelling robe!

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I had a pedicure which lasted for all of five minutes when I managed to kick my sun lounger – maybe there was a good reason alcohol is not aloud 😉

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We rounded the day off nicely in an establishment that does let you have alcohol, huddled under a umbrella in a thunder storm (possibly not the brightest thing to do). Unfortunately the flash on my phone is so rubbish you can’t see how fab we looked after a day at the spa 😉

 

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One Comment to

“Here we go again!”

  1. Avatar August 20th, 2014 at 7:14 pm snowy Says:

    I think even I would get sick with that carpet!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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