Still on that boat…

Strawberry blonde in a dizzy world!

Cremant, carving pumpkins and chazzer shops

November7

Well, I’ve had a great couple of weeks. I’m even starting to dare to think that the antibiotics are actually working because it is Lyme Disease after all. So many people (some of who are unaware that I’m even sick) have commented on how I’m looking better. I’ve had lots of friends come for visits and although I’m always a bit worn out afterwards it has not been for days or weeks which is generally how things go. It has been so great to feel a bit more normal.

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The Elphic’s and the Bradshaw’s came for a family outing and Zara made sure I didn’t miss out on desert (I had been a very good girl after all) and got me a Punky Penguin.

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The Yoga girls came for a reunion where we did absolutely no yoga (as usual) but drank lots of Prosecco (err as usual) and ended up all joining in with a singing Mexican wave in the local pub (not so usual!).

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Soph came for a couple of days bringing a nice bottle of Cremant from Paris (did I tell you she’s my favourite?) and we had a great time getting bargains in the local charity shops and making pumpkin soup. The kids almost knocked me over grabbing sweets on Halloween – who knew four year olds were so strong, it’s amazing what a few kg’s of sugar can do!

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I just really hope this good patch continues. It looks like next step is IV antibiotics for a while and see if I can get this thing shifted once and for all (if it is Lyme). I hardly dare imagine what life would be like if I get better as I don’t think I can cope with another wasted journey. I’m so excited about potentially being able to go for a walk without drama or going to a shop and not having to do a super market sweep style grab and run before I pass out. Once more, fingers crossed!

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2 Comments to

“Cremant, carving pumpkins and chazzer shops”

  1. Avatar November 8th, 2014 at 4:57 pm Emma Says:

    This is great news Sues, fingers crossed for you, I really hope the improvement continues!! Xx
  2. Avatar November 15th, 2014 at 5:18 pm Susan Cartwright Says:

    Cheers Emma xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat