Still on that boat…

Strawberry blonde in a dizzy world!

Rubbish o’clock

November15

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Well I’ve just had a horrible two weeks which is a bit devastating, even more so after having such a good period. On the plus side this is exactly what happened the first time I tried the antibiotic treatment for Lyme disease, so it kind of backs up that it may be doing something but just for a limited time. That’s twice that I have had a really good few weeks towards the end of the treatment and then I totally crash and burn about three weeks after I complete the course. It could be a coincidence though.

Coincidence God[1]

I’m going into hospital on Monday to start a three week course of IV antibiotics that are more specific to the treatment of Lyme disease. Or IVF, which is what my mum has told half the village I’m starting – I think a few people are wondering what on earth is wrong with me!

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I’m really scared. Not of the hospital stay, the needles or even the potential side effects of the treatment. I’m scared that it won’t work, I don’t think I’ve got it in me to go through another failed treatment. This had better work!

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One Comment to

“Rubbish o’clock”

  1. Avatar November 27th, 2014 at 7:36 pm Emma Says:

    Good luck with the IVs, fingers crossed you see a difference xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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