Still on that boat…

Strawberry blonde in a dizzy world!

A nightmare before Christmas

December20

Well the last few weeks have been utter hell. I’ve come off some drugs that I’ve been on for years and I’ve been like a drug addict going cold turkey. Nausea, exhaustion, aching, insomnia (or nightmares if I do actually sleep) not to mention the worst vertigo ever – not fun at all! Things can only get better.

Needless to say Christmas shopping hasn’t been high on my to do list. Thank goodness for Amazon and a little creativity. I just need to fill them with something or my cousin’s boys may be a tad disappointed!

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I did manage to go to the local last night for some Christmas carols so I’m not a total grinch 😉

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Right, time for a massive glass of mulled wine – don’t worry it honestly is a tiny tree!

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Happy Christmas xx

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7 Comments to

“A nightmare before Christmas”

  1. Avatar December 21st, 2014 at 3:26 pm Snowy Says:

    So sorry you have had such a rubbish time. Really hoping it improves now! Fingers crossed!
  2. Avatar December 22nd, 2014 at 4:22 pm Susan Cartwright Says:

    Cheers Reuben, me too!
  3. Avatar January 6th, 2015 at 12:14 pm Marcus Croskell Says:

    Happy New Year Sues – I hope the Christmas day turkey was better than you going cold turkey! I hope you have made some progress now following the massive IV session. Love from Marcus, Sophy and Jonty.
  4. Avatar January 8th, 2015 at 9:48 am Susan Cartwright Says:

    Ha ha aye it was much better thanks, actually had a good day! I hope you guys had as lovely Christmas? Happy new Year xx
  5. Avatar January 9th, 2015 at 9:10 pm Emma Says:

    How u feeling now Sues?
  6. Avatar January 10th, 2015 at 5:34 pm Susan Cartwright Says:

    Not doing to bad thanks Emma, how are you?
  7. Avatar January 11th, 2015 at 8:33 pm Emma Says:

    All good here thanks! Xmas was a wash out though with norovirus and then the flu at our house, but all fully recovered now! Whoever decided to out Christmas in the middle of winter didn’t think it through properly ha ha!! X

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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