Still on that boat…

Strawberry blonde in a dizzy world!

Hoping for a healthy and happy new year!

January10

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Well Christmas was fun. It was actually the first Christmas since the illness where I’ve actually fully joined in and not had to go for a sleep or leave early. We had a lot of fun at my cousins, we even had some special guests popping in.

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New Years is a difficult time of year and I’m sure I’m not alone in feeling that way. This is the forth time where I have hoped that this will be the year I get my life back and each year gets a bit more difficult. Fortunately I was once again surrounded by friends and family and there is always enough drama (and Prosecco) going on to allow you to forget your problems for a while.

B5XRGP Champagne

I’ve been doing really well apart from the insomnia which is really catching up with me at the moment – I’m really losing my sense of humour! I’m being extra healthy after my months of the ‘Dairylea on Toast’ diet. I’ve even bought a juicer, not my usual (or preferred colour) for a Saturday night. Is it bad that I followed that with a GnT, or is that the definition of a balanced diet?

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I have been doing loads of yoga, Pilates and if I do anymore swimming I think I’ll develop gills. It feels good to be off the medication which furthers by belief that this isn’t all migraine and something interesting is going on with the Lyme thing. Also, I pick up every time I have any antibiotics so it really is most odd. I see my consultant in a couple of weeks and it will be interesting to see what his take on it all is.

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Oh, soph and Hayden cheers for the Spirulina powder it’s an absolute delight to take 🙂

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5 Comments to

“Hoping for a healthy and happy new year!”

  1. Avatar January 11th, 2015 at 8:31 pm Emma Says:

    Happy new year to you Sues. I know this will be a good one for you! Will be interested to hear what your consultant thinks of recent events xx
  2. Avatar January 13th, 2015 at 8:10 pm Jan (A gluttonous wife) Says:

    Happy New Year Sues!! This year is going to be different, I can feel it in my bones!!! Either that or I hurt my back 🙂 we have to stay positive honey xxx
  3. Avatar January 15th, 2015 at 4:05 pm Susan Cartwright Says:

    Hi Jan, how are you coping coping coming off all the drugs? Hope you’re doing well xx
  4. Avatar January 14th, 2015 at 6:31 pm Snowy Says:

    Keeping my fingers crossed for you Sues!!
  5. Avatar January 15th, 2015 at 4:04 pm Susan Cartwright Says:

    Cheers guys 🙂

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat