Still on that boat…

Strawberry blonde in a dizzy world!

Everything is not awesome!

February24

Well since the last post I’ve been in a total mess. My vertigo has been the worst it’s ever been, I’ve been mainly confined to bed – a trip to the wheelie bin two metres away from the back door was quite an achievement yesterday!

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I have been enrolled in a sewing course and I’m looking forward to seeing how this will turn out – I’ll keep you posted.

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My poor Mother is forever thinking up activities I can do that won’t take up to much energy to try and save my sanity – I even did a flippin jigsaw puzzle the other day! I have also been trying to brighten up my life in other ways.

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The Yoga Girls certainly cheered me up, who can’t laugh with Prosecco, Dolly Parton, Moon walking and versions of ‘Everything is Awesome’ from the Lego Movie until three in the morning – I’m sure my neighbours were thrilled!

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I have had some news though. The Hospital for Tropical Medicine wanted the opinion of a Doctor who specialises in Lyme to see what to do with me next. I was prepared to pay as this has gone on long enough but it turns out all the money in the world won’t help me as the NHS has pulled funding of his Lyme clinic so now it doesn’t exist – I know, just to make things a bit more fun! Fortunately he contacted me and after discussion with the Doctors at the Hospital feels that a trial of longterm antibiotics is worthwhile, seeing as it’s the only blood test to come back positive and the only treatment that I have responded to. So today is day one of a three month rotating course of antibiotics. This has to work – I’m seriously out of options and more importantly patience!

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5 Comments to

“Everything is not awesome!”

  1. Avatar February 27th, 2015 at 9:47 pm Tim Says:

    Really hoping this new strategy can start the well earned road to recovery. It’s been far too long but I’m still optimistic things will turn out good. Always thinking of you
  2. Avatar March 19th, 2015 at 9:42 pm Susan Cartwright Says:

    Thanks Tim, just had a good week which coincided with being on the antibiotics for a couple of weeks. Just hoping it’s not a coincidence but that’s four times that’s happened now…dare I even hope? Xx
  3. Avatar March 16th, 2015 at 10:42 am Jan (A gluttonous wife) Says:

    I’m crossing all my bits for you 🙂 xxxx Jan x
  4. Avatar March 19th, 2015 at 9:42 pm Susan Cartwright Says:

    Thanks so much Jan xx
  5. Avatar March 23rd, 2015 at 7:48 am Snowy Says:

    Desperately hoping this is the solution sues! Keeping fingers and toes crossed.

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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