Still on that boat…

Strawberry blonde in a dizzy world!

Amazing birthday!


I had the best birthday ever! Not only was it the best I’ve felt on a Birthday since I’d become sick (last year I was a total mess!) I had a lot of surprises (to put it mildly!), cards and visits.


The big shocker that I still can’t get my head around is that my friends have clubbed together and booked for me to go back to Sardinia Yoga. Not only am I shocked about how generous everyone has been (and pretty secretive!) but I’m totally overawed that my friends have realised just how important going to Sardinia is to me. It is the one place I have been able to feel like a normal person and not an invalid. The yoga has really helped me cope with this illness both physically and mentally. I still can’t get over it and I am welling up just thinking about it. I may have been dealt an unlucky hand with my health but I have certainly been blessed with some amazing friends. Thank you so much, I’ll never forget it 


I managed to go for another walk last week in a place that actually has tics – I was pretty careful, I’m not getting bitten again!


On the illness front I’ve had a blip for the past couple of days (I think I’ve had way too much excitement!), I’d be lying if I said I wasn’t a little terrified. I’ve started another course of antibiotics so the pattern so far is that I pick up a couple of weeks into them. So I have to stay positive that in three weeks I should be back walking around the park. Until then I’ll focus on Sardinia – is it too early to pack there’s only 125 days to go? 😉


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5 Comments to

“Amazing birthday!”

  1. Avatar April 22nd, 2015 at 12:42 pm Snowy Says:

    Never too early to pack your bags for holiday!! Something to look forward to at least 🙂 Fingers crossed for the next course of antibiotics!

  2. Avatar April 23rd, 2015 at 12:36 pm Wheeler Says:

    Agree, not to early. Glad the surprise was total, Reuben’s about a big gossip as I have met. Fingers crossed for the anti-bionics.

  3. Avatar April 24th, 2015 at 8:28 am Susan Cartwright Says:

    I had absolutely no clue. In fact, the way Reuben and Helen sat me down I was getting worried it was an intervention!! Totally amazing surprise!

  4. Avatar April 23rd, 2015 at 7:55 pm Karlos Says:

    Wishing we could only help more

    Looking forward to when you can travel downunder and have some adventures here with us.

    Hope Ellie gave you some special reserve smiles that I spoke to her about: those ones make me feel better

  5. Avatar April 24th, 2015 at 8:29 am Susan Cartwright Says:

    Thanks Karl, that would be amazing, I haven’t been able to even dare think I’d ever manage that. Looking forward to those smiles xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉