Still on that boat…

Strawberry blonde in a dizzy world!

Ciao!

October15

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Well Sardinia was as awesome as I expected! After a couple of days the vertigo settled down and I managed to do some really relaxing yoga (we didn’t just stand and chat all day honest!)

 

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As time went on I managed to do more and more, eventually even (attempting) Acroyoga. It was so amazing to feel like a ‘normal’ person for a while!

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By the end of my time I even got onto chanting on the beach and meditation – well, if you can’t beat them join them and all that!

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Alcohol wasn’t my friend initially after being on the treatment for so long, I was such a light weight. The girls were very supportive and with their encouragement by the end of the week I was the first one with her hand up in the air for a drink!

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It really helped to have a good catch up and a natter with the girls, it’s so amazing to make such good friendships from a holiday four years ago. We always have such a good giggle no matter where we are:

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Or what mode of transport:

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As long as we can have a glass of Prosecco (or two!)

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Thanks again to everyone who helped me get there. I’d had a really rough time on the treatment prior so to have such a wonderful time at the end of it really did make it bearable. My vertigo was very well behaved whilst away and the good patch lasted for longer than normal on my return. I’m really hoping this means that the antibiotics are having an effect, only time will tell…

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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