Still on that boat…

Strawberry blonde in a dizzy world!

Day 6

October26

I’m feeling much brighter today. I do feel like I have the combined hangover from everyone who was out last night (annoying when you’re on the lime and soda!) but my vertigo isn’t as bad as I had expected. I’ve had a really chilled out day sewing, cooking and getting my moneys worth out of my Netflix subscription. I’m having dinner cooked for me tonight which I’m really looking forward to, its nice to not feel quite so sick today so good food is a highlight for a change! Speaking of cooking I’ve been heating myself up and I’m wondering if this is helping the treatment.

Infrarotsauna-XL-Deluxe-mobile-Infrarot-Waermekabine[1]

Its called a portable Infrared sauna, It’s supposed to help by clearing the toxins generated from killing the Lyme with the antibiotics. I thought it was worth giving a go as there is a theory that the bugs don’t like the higher temperatures and that could explain why I feel better when I’m in Sardinia – well that, or the never ending supply of Prosecco, I’ll try that next! I’m not sure if Jeremy Beadle is going to pop out and say its all a big joke, but at this point I’d try anything to feel better – I do look like I should be in an episode of Dr Who! Well, as long as it ‘exterminates’ the Lyme 😉

dalek1[1]

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4 Comments to

“Day 6”

  1. Avatar October 27th, 2015 at 2:39 am Emma Says:

    We need a photo of this new outfit please!
  2. Avatar October 27th, 2015 at 9:47 pm Susan Cartwright Says:

    Oh dear, ok it will be up soon!
  3. Avatar October 29th, 2015 at 11:35 pm Snowy Says:

    Interesting theory about heat! Does it really look like the picture??!
  4. Avatar October 30th, 2015 at 1:44 pm Susan Cartwright Says:

    Yes, I’ll get a picture later!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat