Still on that boat…

Strawberry blonde in a dizzy world!

Here we go again!

October20

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Well the good patch didn’t last long enough and I started to get decidedly iffy again. So the plan is another six weeks of the nasty antibiotics and hope that I pick up again, but for longer this time.  I had a really nice night down ‘the local’ on Friday in preparation for my housebound/T- total state and had a few glasses of wine. I’ve been feeling quite anxious about this as I had a really awful time on them last time, I’m really hoping that this time will be easier!

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So day one hasn’t been to bad (only had one dose so far though) I managed to get to yoga this morning. There was a man covering the class as my yoga teacher was away. When he asked if anyone had any problems I kept my mouth shut as I have a list as long as my arm and I’m by far the youngest there, its just embarrassing! At the end of the class he called me over to talk about an old injury. I had an accident years ago and I still have a bit of trouble with it in certain poses. He too had had a similar injury and was giving me some advice. Little did he know that’s the least of my problems! When he started talking about difficulties walking I had to giggle to myself, I wish I could walk far enough that I could actually get problems with it. He told me that everyone has a very different journey with yoga and I need to be very patient as I’m going to have a very different one – if only he knew the half of it, I was more concerned about getting back to the flippin car!

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Anyway, I’ve been on the sofa ever since but so far not to bad. Even had the energy to make spiralised courgette Pad Thai – gluten free isn’t all bad!

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Let’s see what tomorrow brings 🙂

 

 

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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