Still on that boat…

Strawberry blonde in a dizzy world!

Day 20

November8

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Not the best day but not as bad as I expected after only a couple of hours sleep. Despite prescription sleep medications and litres of herbal’ God only know what’ sleeping remedies it just didn’t happen for me. I even tried an Oprah Winfrey meditation video in my desperation! In the end I got so wound up about not sleeping I knew it was never going to happen, I got up and cleaned my oven, made leak and potato soup and baked a batch of cookies all before 8am. Apologies to my neighbour for the use of not only the blender but my whizzer too – I’d kind of got to the ‘if I can’t have any sleep why should anybody else?’ stage of the crazies in the insomnia stakes. The day was a write off but I did well in the evening, finally snapping out of the zombies enough to go out for a nice meal 🙂

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2 Comments to

“Day 20”

  1. Avatar November 10th, 2015 at 9:05 am Snowy Says:

    Jeeez if an Oprah meditation video won’t do it then that’s bad news! Were they gluten free cookies?
  2. Avatar November 10th, 2015 at 5:15 pm Susan Cartwright Says:

    No they were ‘full fat, full sugar, full dairy and just bugger it all’ cookies!!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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