Still on that boat…

Strawberry blonde in a dizzy world!

Day 29

November18

I’m still not sleeping well, even fell out of bed the other night which is something I haven’t done since I was about two years old! Looking on the bright side I must have been asleep for a little bit to actually manage that. I felt pretty bad again today but went to the shop with my good old mum and got some food. I was called by my GP who was concerned as my latest blood tests showed that I was neutropenic and a little anaemic.

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This means that my white blood cells that help to fight bacterial infection are very low. Glad to see that all the things I have been doing to improve my immune system (supplements, herbs, diet, sauna) have worked so well! I have to avoid people with germs and colds – not to difficult as I’m not exactly a social butterfly at the moment. Thinking about it, although it’s bad it kind of backs up that I have a chronic bacterial infection using up all my resources, so maybe, just maybe, I am on the right track? The diet to improve me immune system is clearly not working, where’s that gluten full cake?

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2 Comments to

“Day 29”

  1. Avatar November 18th, 2015 at 9:03 pm Pete Says:

    Mmm. Cake. My decidedly gluten full Christmas cake is already made and being fed suitably large amounts of brandy. It’ll knock a few socks off on Christmas Day!
  2. Avatar November 19th, 2015 at 6:14 pm Susan Cartwright Says:

    Sounds great, I did mine too!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat