Still on that boat…

Strawberry blonde in a dizzy world!

Day 35

November24

One week to go! It was so nice putting the last lot of drugs into my organiser, I’m not even going to think about the very high likelihood of repeating this in a few weeks time and concentrate on the Gin and Tonic at the end of this treatment! I managed to go to yoga this morning which was fab to try and do something vaguely energetic after so much sofa time. I even got a ‘well done’ from the instructor which really pleased me, I think that was the first time in three years – lovely but a hard task master. I know yoga is not supposed to be competitive but I managed something that nobody else could do, it just made me have a little chuckle to myself and confirm that my body isn’t quite ready for the knackers yard just yet!

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The bad news is I’m getting a cold (like most of the country expect!) which is hardly surprising considering the state of my immune system. I can cope with the cold I just hope it doesn’t impact on the vertigo to much. Bring on the Lemsip 🙂

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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