Almost there. Had to put the last few days all in one post as that is how exciting they have been, can’t even get a flippin paragraph out of it! The Patch was far from successful, it gave me blurred vision which made the vertigo that little bit more problematic – just what I needed! I’ll write more when I can see again, this is so far from funny!
Who am I?
Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.
Now – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!
I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.
A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!
Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉
@still_on_that_boat
Fingers crossed it begins to pay off soon Sues xxx
I so hope so!
So how are things now? Any better?
No, I can’t tell you how disappointed I am 🙁
How long can it take to see an effect?
I’m not seeing my specialist for a couple of weeks but speaking to his colleague yesterday I got the impression that it’s looking like it hasn’t had the effect expected/required 🙁
That’s a shame Sues, but don’t let it get you down – don’t think ‘the treatments haven’t worked’ but instead focus on ‘the treatments haven’t worked YET’. Keep the positive thinking! Enjoy the mulled wine xx