Well I’d count the appointment in Washington DC as a roaring success. They were so knowledgeable about Lyme and how to treat it and they were pretty confident that they can get me better. They are certain I have Lyme Neuroborreliosis and also another co-infection called Babesia which explains my odd blood results and some of my symptoms. They have seen loads of patients with my exact symptoms which was reassuring – yay I’m not mad! They have a very comprehensive plan which all seems like a sensible approach, although very complicated the amount of drugs and supplements I have to take.

It’s not going to be a quick fix (I’d given up on that idea years ago!) and it will be a long tough road ahead with lots of ups and downs. I’m ahead of the game because of my diet, saunas, salt baths and yoga that I was already doing so I’m really pleased all of the hard work has been worth it. I’m cautiously positive as I’ve heard several consultants say they can get me better and then after a while just give up on me. I feel so much happier now that I have confidence in someone 🙂

I’m currently on lots of anti-epileptics to try and calm my brain down from the damage caused by the Lyme, they will help get the pain, sleep disorder and brain fog down before starting antibiotics. I don’t know if its adrenaline or being given some hope but touch wood I feel much better already. They are supposed to make you groggy but I’m sleeping better and my head is much clearer in the day. I’ve even managed to take enjoyment in the more simple things in life – plants are doing well.

I start the antibiotics in a couple of weeks so I know that there will be rough times ahead but hey, I’ve managed it before and I will again.

Washington was really tough and I spent most of it in bed. The corridor from hell to get to the room didn’t exactly help symptoms!

My Dad went out sight seeing during the day, but it was okay he’d left me with supplies to keep me going – I was very glad of the cereal bars I’d packed that for sure, I can’t have any of that!

We did go out for dinner in the evening and had a good laugh, my pure relief of the outcome allowed me to really enjoy it – I think dad did too!

One morning I did manage to do a bus tour (I’m good at sitting down!) so I did manage to see Washington, it’s a lovely city. Arlington Cemetery was very humbling – dying in service to your county puts things in perspective and if they can do that I can fight for my health, I can do this!