Still on that boat…

Strawberry blonde in a dizzy world!

More…errrr what was I writing…mad things to add to the list!

October6

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Oh pants I can’t remember where I wrote them down, ah here we go:

  • I couldn’t find where I’d left my note book that contains the list of things that I actually remember messing up!!
  • I woke up early and made a cuppa to take back to bed and listen to the radio. I went for a sip and found that I had brought up the pint of milk instead of my much loved first cup of decaf of the day.
  • I’m now wearing out the carpet on the stairs as I go up and down with no idea what I’m doing once I get there
  • I put the grill on instead of the oven – that won’t cook my GF pizza now will it?
  • Waited for pizza cooking in the oven when I’d already got it out of the oven and it was waiting for me on the side, nice and cold.
  • lost my favourite scarf – it can only be in my house or doctors surgery but I still can’t find it 🙁
  • lost my favourite ring – see above, no luck
  • People in queues behind me in Tescos get frustrated. I take so much time making sure I give them my reward card, pack all the items I’ve bought, take the cash back and leave with my card that I may as well pull up a chair and have a cuppa (or a pint of milk)

Arghhh when will I get my brain back!?!?!

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2 Comments to

“More…errrr what was I writing…mad things to add to the list!”

  1. Avatar October 9th, 2016 at 1:18 pm Woody Says:

    Look on the bright side. a
    At least you have brain to be
    Get back. As you can see I’m struggling to post this! Can’t work out how to erase mistakes!


  2. Avatar October 11th, 2016 at 9:28 am Susan Cartwright Says:

    No I’m still winning on stupidity!


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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat