Still on that boat…

Strawberry blonde in a dizzy world!

Spinning top

October4

In the words of Dead Or Alive “you spin me right round baby right round”. My vertigo is absolutely terrible and I can’t walk for more than a few metres. The clinic did warn me about this but it’s still devastating. I have spent a lot of time on the bathroom floor (I really must clean it as my chance of catching something else from that is highly likely!). Keeping my head still but wanting to be sick is an interesting conundrum.

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My poor mother had to sit in the kitchen for three hours with me as it came on so suddenly and I could not move my head at all. At least my mum could read out some pages out of my latest book that I was given. It was interesting as apparently all my problems are my parents fault (awkward!) – just kidding it’s really interesting and I love that person for trying to help me!

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Dear God I hope these people in the American know what they are doing – I’m currently a total mess. I feel like I was let out of the box and now I’ve been shut back in 🙁

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last week I was managing to do this which I now find much easier than walking. It’s not perfect as I had my phone on the ten second timer – yes I took it myself, ten seconds really isn’t that long and I needed a couple of attempts – not very zen! Don’t tell the benefits people though they will have me in the circus before you know it!

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What’s worse is that I’m currently stuck in my sauna for another 15 minutes with Radio 1 on and the rapping has started – I’m WAY to old for Radio 1 and I must accept this. Golden Oldies it is for me. Well at least I have breakfast to look forward too.

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And my awesome last pair of PJ’S thanks to all the night sweats I’m experiencing – hot stuff (excuse the pun!) aren’t I 😉

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2 Comments to

“Spinning top”

  1. Avatar October 5th, 2016 at 8:14 am Snowy Says:

    Stick in there Sues and let’s hope the Americans know what they are doing! Very impressed with the Yoga thing. My head would be bright red if I did that for more than a second or two!
  2. Avatar October 11th, 2016 at 9:29 am Susan Cartwright Says:

    I know how competitive you are, I bet you’ve tried it 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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