Still on that boat…

Strawberry blonde in a dizzy world!

A new low…quite literally!

December30

Well I thought that having to stick this to the front door was a pretty awful point in the treatment:

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That was before I passed out onto the floor of my house. Every time I tried to lift my head I passed out again. Fortunately I’d been on the phone to my Mum at the time as I was feeling a bit scared that the sofa was tipping (understandable worry!). Unfortunately I had left the keys in both doors meaning that you can’t get into the house from the outside with the spare key. My poor mother was looking through a crack in the curtains and could see me laying there in the middle of my frontroom. Apparently she even thought of calling the fire brigade in her panic to get into the house. I felt like the floor was the wall and was the right way up if that makes any sense. like those scenes in Batman.

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After a while I could crawl to the front door and let my Mum in. I then had to lay in the porch for a long time before I could even think about moving. We had a slight problem with my Mum getting through the child proofing on my medication – oh and tablets are a bugger to take when you can’t move your head. We also had a good laugh that even in the state that I was in I could still manage to talk about clothes! I’m now a tad worried about leaving the house which is understandable as I don’t want to make an idiot of myself. I think I’m just going to have to stop caring about what people who I don’t know think about me. I sooooo need to read this very appropriate Christmas present!

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and hope that this Christmas gift is right

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Healthy times are due my way…please 🙁

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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