Still on that boat…

Strawberry blonde in a dizzy world!

Merry Christmas from the Grinch!

December23

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So the humiliation continues. I have found now that my driving skills have seriously deteriorated, my spatial awareness is terrible. We went to the local pub the other night and I drove. When we came home I was really struggling to park on the road outside my house. I have done this a zillion times before. I was back and forth, back and forth, a metre out, on the kerb and then a metre out again. Basically a total disaster for about ten minutes, it’s a straight bit of road! it really exhausted to me and I staggered to my door not used to my high healed boots (kinda a slippers or ugg boats girl at the moment) dropping keys and finally got into the house. The next morning we went to leave the house when the very same man who helped me with the ‘iced over door saga’ strolled over. He said ‘it looked like you’d had a good time last night, had you been to a Christmas do?’ to which I replied ‘no, I’d had two pints of water at the local’ – he must think I’m a total airhead and he’d be about right at the moment!

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To add to the humiliation I passed out at my appointment with my naturopath. We then preceded to continue the appointment from the floor – he is a top guy!

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Hmmm I have to admit this picture is a slight misrepresentation of how the appointment proceeded to go – not quite so happy or attractive (understatement of the year!) and more sobbing and soggy tissues!!

At the moment I have had so much nausea and vomiting I can’t even try the CBD oil to see if it will help with everything else. I have gone to desperate measures to feel better and nothing is working. I went to a yoga class the other day (highlight of my week!) and I had to dash after twenty minutes. The instructor got hold of my phone number to tell me to have some free sessions as she is feeling bad about it – pah not as bad as me I can tell you!

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Hmmmmm just need to be able to actually do yoga I guess?

We made a slight mistake with the Christmas tree, it was so diddy compared to the others we thought it was the one. We got home and then realised it was so massive for my house, we can hardly see the TV but it looks great – I had to go out and buy A LOT of fairy lights mine looked a tad pathetic, they are on there honest!

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Happy Christmas every body xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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