Still on that boat…

Strawberry blonde in a dizzy world!

Oh dear oh dear!

December17

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Yes, another entry to the ‘Stupid Sues’ files. Here we go. I went to get in my car the other morning and found that it had frosted over – to be honest it’s unusual for me to be up early enough to catch the frost. I went to open the door and found that I couldn’t open it. My door had frozen over previously so I kept pulling hoping to eventually break it free from the ice. At this point a neighbour shouted over asking if I was OK. I said that I was having trouble opening the door and did he think hot water would loosen the door enough for me to open it? He kindly came over to help and the pair of us were pulling and pulling at the doors. He then asked me ‘have you unlocked the car?’ I pressed the key and almost died with embarrassment when the doors sprung open. Iced oved floor please swallow me up now!

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I redeemed myself putting together my Mum’s exercise bike. It was like souped-up Meccano but with the smallest most undetailed instructions going but I managed it (high-five me!). I’m sure this was quite the point of it though! 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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