Still on that boat…

Strawberry blonde in a dizzy world!

I have still resisted!

January16

I managed to go to a yoga class this morning which is pretty good for me at the moment. I had a few ‘is this really a good idea?’ moments but I persevered and made it there. I did get told multiple times that I looked awful and that I looked like I wasn’t all there (they had that bit right, I was so out of it!). I’m never sure if being told that you look awful when you feel awful is a good or bad thing? Hmmm I guess it’s nice that people actually care enough to notice.

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Fair play to my Yoga instructor who took it all in her stride when I told her that I keep collapsing, she didn’t even flinch when I gave her a tin of controlled drugs and asked her to give me one of those if it happens. Well, they say that yoga chills you out! So although I’m now shattered, today is most definitely not cartoon day 🙂

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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