Still on that boat…

Strawberry blonde in a dizzy world!

A move?

March9

Well the trip to Washington was both good and bad news. They have taken a step back with treatment as my body isn’t coping well. I need a couple of months where they relax my brain after the total mess that it has been in. This is good as it should give me a better quality of life for a couple of months but clearly this is period of recharging the batteries before I attack again. Previously I had wanted to go through a period of hell and be better quicker rather than prolonging the course of treatment. After 6 weeks on the sofa unable to move I can confirm this is not the way to go and there was no way that the clinic were allowing that anyway.

I managed to have fun in Washington as I was not confined to my hotel room which was absolutely amazing! We made a lot of famous friends but to be frank they didn’t have much chat and seemed a bit fake.

Bieber was not at all impressed:

The word cougar has clearly not crossed the Atlantic:

Brad didn’t even acknowledge I was even there!

Taylor told me to just ‘shake it off’

Oprah totally agreed:

and George was a total gent and we discussed it all over a cup of Nespresso (decaf):

It always helps when you are in a position of power – ‘that’s two cups of Earl Grey, a slice of gluten free Victoria sponge and some cucumber sandwiches with no crusts NOW! Oh and why does the budget not stretch to a smartphone?’.

 

So I checked out my new pad. Hmmmm it would be a shorter commute to my appointments but where would I put my veg patch?

Michael was quite happy with a good American breakfast

 

And (a slight) upgrade 😉

Nah just kiddin – he couldn’t afford the babysitting bills!

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One Comment to

“A move?”

  1. Avatar March 24th, 2017 at 8:23 am Snowy Says:

    You and Bieber make a great couple!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat