Still on that boat…

Strawberry blonde in a dizzy world!

Shake it, shake it, like a poloroid picture, shake it , shake it (oh oh)

June16

Yeah bit random I know but that lyric from Outcasts’ song Hey Ya sums it up nicely! Well to add to my problems I have developed shaking and twitching. It’s like I’ve been plugged into the mains. It’s pretty scary but I could cope with it (well just about – knives and forks can be a bit dangerous!) if I felt better in other ways, but no, that would be all too easy.

My vertigo is really off. I’m all over the place and I almost even missed sitting on a stool the other day as the world just dipped from under me. I have also slept for days. Not the best timing when I supposed to be going on a holiday in a week.

I was having one of my random good days last week so I psyched myself up to go to Tescos. I made sure my phone was fully charged, that a responsible adult was about if I had trouble and then took a few deep breaths and left the house. I managed to battle the traffic and get to the shops. I had one of the closest parking spots to the shop, I almost did a ‘hi-five me’. I went to get my bag and realised that I had all my bags for life but no handbag. A few naughty words were shouted and I drove home. I was so mad at myself I missed the turning for my village and almost doubled my journey length. Another thing to add to my list of things to remember on the inside of my door…if I remember of course 😉

posted under Uncategorized
One Comment to

“Shake it, shake it, like a poloroid picture, shake it , shake it (oh oh)”

  1. Avatar June 18th, 2017 at 10:40 pm Woody Says:

    Well, you’ve made me laugh!!! Hang in there!!

Email will not be published

Website example

Your Comment:

Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat