Still on that boat…

Strawberry blonde in a dizzy world!

Thank god for gluten free pasta

July20

Well, things are bloody awful. I feel so sick I can’t even open the fridge as the smell of pretty much anything makes me retch. My head and neck are still killing me and when it has been over two weeks you do start worrying that it will never end. Especially since nothing helps it, I only get some relief from ice packs and hot water bottles.

I have to eat when I take the antibiotics and the only thing that has worked so far is pasta and pesto. I’ve had that every day this week. It keeps the tablets down but the nausea comes back not long after. I went to bed last night (after taking a zillion essential tablets) taking deep breaths and saying to myself ‘don’t be sick, don’t be sick, don’t be sick’. Not the most relaxing way to go to sleep!

This morning I feel like I’ve had about four bottles of red wine and not the good stuff! God even mentioning wine is making me want to hurl. I guess I have just got to focus on the end game.  🙁

Oh and looking for images of vomiting was a really dumb idea!

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2 Comments to

“Thank god for gluten free pasta”

  1. Avatar July 30th, 2017 at 5:17 pm Emma Says:

    Sounds rubbish Sues. Hope you’re feeling a bit better soon x


  2. Avatar July 30th, 2017 at 7:02 pm Susan Cartwright Says:

    Thanks Emma – updatw to follow 😉


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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat