Still on that boat…

Strawberry blonde in a dizzy world!

Open wide

September29

The muscle tension in my jaw has caused my jaw to keep locking and this has meant that I have been eating and drinking through a straw at times. Laughing is not good (not too much worry about that at the mo!). I have had to cancel my dental appointment reason being ‘I can’t open my mouth’ – the fun continues!

No chewy NKD bars for me for the time being 😉

I did have a nice trip to Spain (airBnB is awesome!) but I’ll write about that when I’m not feeling really ill as I managed well there 🙂

posted under Uncategorized
4 Comments to

“Open wide”

  1. Avatar October 2nd, 2017 at 7:09 pm Emma Says:

    Nice photos!
  2. Avatar December 7th, 2017 at 4:03 pm Susan Cartwright Says:

    I know. A professional photographer (and I suspect some filters) were not used at all – honest 😉
  3. Avatar December 4th, 2017 at 11:55 pm Snowy Says:

    Amazing photos – looks like an advert for something!
  4. Avatar December 7th, 2017 at 4:01 pm Susan Cartwright Says:

    If only I was well, I’m sure I’d be a Oscar winning actress by now! I’ve certainly had plenty of practice at pretending I feel ok 😉

Email will not be published

Website example

Your Comment:

Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat