Still on that boat…

Strawberry blonde in a dizzy world!

America…again!

September24

My sister and my nephews have been over for my cousins wedding. It has been really good fun getting to know the kiddies. I have loved playing with the toddler as he is such a character but feel so sad that I didn’t have more energy to give. Sticking Frozen on worked when I needed a rest – well for about 6 minutes max! Smart cookie – taught me how to take a selfie 😉

Well, I’m off to Houston in America (unfortunately I now have that Neil Diamond song going around and around in my head). This time it will be to stay with some friends for a few weeks not just a quick dash for another pointless and disappointing appointment.

I’m really really poorly at the moment so I’m a bit worried about how I’m going to get there. Yes, by plane before some smart Alec puts that in my comments! Even if it’s just the change of scenery from my bedroom to a bedroom over the pond I think it will do me good. Especially as my friends are such amazing company. I think I may be gong back to basics and trying laughing therapy instead of all this bonkers stuff I’ve tried that has made me worse. I’m having to take an extra case for all my drugs and supplements – I wish I was exaggerating!

Lets hope a bit of rest and relaxation will help and that it wont be ‘Houston we have a problem!’

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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