Still on that boat…

Strawberry blonde in a dizzy world!

Ozone therapy


Well the only thing I knew about the ozone was that we were slowly destroying it with hairspray causing holes and hence global warming. It turns out that it has other uses. It seems it can be rather useful in the treatment of Lyme Disease too. Now, I’ve done a lot of therapies over the years. I think my low point was the ‘look-at-a-disco-ball-until-you-pass-out’ therapy’ (I only wish I were joking!). This one I was pretty nervous about – it was rather far out. I mean beyond the ozone layer ‘far out’!

Ok the science bit again. This therapy involves taking about an arm full of blood and then putting it into a bottle and essentially transfusing the blood back into yourself. The difference is is that ozone is introduced into the blood through a machine that it passes through. Now ozone is just like oxygen but souped-up by having an extra oxygen atom. This means that your blood that is now being put back in your body is highly oxygenated. If you have seen previous posts you will have seen entries on the hyperbaric oxygen chamber. Now this uses the same principle. That the Lyme hates and can not thrive in a highly oxygenated environment. So this therapy is also used in cancer and MS patients too.

Unfortunately I had rather a wobble earlier on in the week. I’d been dong the IV silver for over a week and I thought I was doing really well. I felt really positive about the new treatments and what potential benefits I could gain from them. In fact I was feeling more hopeful than I had in quite some time. Then my world came crashing down around me – my blood results showed that my liver wasn’t quite as impressed with the silver therapy as I was.

I feel so stupid now but I totally fell apart for the entire day.  I must have seemed like such a drama queen but it was the massive let down once again, the worry about my visa running out soon and the guilt of my amazing friends having to fund this new venture for even longer. like my body letting me down was then letting them down. I have been here so many times before, my body letting me down over and over it just felt like another treatment plan doomed to failure. I am so so thankful to the nurse there who didn’t think I was bonkers (well if he did he hid it well!). He took the time to talk it all through with me and actually that time really paid off as one of the medications I had been taking may have caused the problem.

I had to take some time off from the silver treatment and I felt like such a failure. I detoxed like crazy and looked up every remedy, procedure even spell I could possibly do to get my liver back playing ball again. By some miracle it worked like a charm, so much so that I was able to re start the silver treatment the following week. This was a real wakeup call for me. I had been blaming and hating my body so much and that was never going to get me anywhere. I guess it’s like teaching someone who is dyslexic. The tools are right there it’s just that a little more patience or a slightly different approach is needed. Beating up the student would never achieve anything positive. My body just needed a little more TLC (and patience) and I was back on track. Hating our bodies for giving up on us is never going to get us anywhere.

So, I’ve finally learnt to be a bit kinder to my body.

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One Comment to

“Ozone therapy”

  1. Avatar November 29th, 2018 at 9:21 pm Emma Says:

    This is really interesting. What’s the latest now? Hope the liver is holding out! X

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉