Still on that boat…

Strawberry blonde in a dizzy world!

Pretty chilly in Houston

October6

So, the ‘crazy because I’m totally desperate’ treatments begin. Bring it all on – I’ll do anything!

I have been trying whole body cryotherapy. The theory behind the whole body cryotherapy is that your body basically thinks it’s dying so the flight, freeze (ha ha) or fight response kicks in. So the blood vessels vasoconstrict (become narrower in diameter) to save the blood for your major organs which can help your body to repair damage. Effectively like having an ice bath after an intense workout but colder, much colder! In Lyme the bugs have antigens which cause the release of cytokines that cause inflammation within the body. Some of the leading experts think that the cryotherapy stops the excess cytokines and this could be a way of getting your own immune system to put the Lyme in its place without the use of nasty antibiotics or herbs.

You basically stand in a freezer for up to three minutes in nothing but thermal gloves, socks and slippers. I was very ‘British’ and was shocked that I could not wear a bikini and was checking the place out for cameras. I should have been slightly more concerned about being made into an ice cube. I know this is fairly obvious but IT IS COLD!

I managed it and my skin temperature got to 10.5 degrees Celsius (normal should be around 33). Apparently singing ‘ice ice baby’ is fairy common and I wasn’t too original. I did feel a tad smug, when the next time I went I could hear the guys who went in after me squealing like little girls.

Has it worked? I don’t know but it makes me high as a kite because of the rise in endorphins. So much so that when I went into the much needed sauna after I was singing ‘Your Hot and You’re Cold’ by Katy Perry and left the building telling everyone I loved them. Including some random man in the waiting room who looked fairly amused if not a little scared. ‘High’ may not be ‘healed’ but it’s far better than most of the side effects I get from therapies that’s for sure. I LOVE YOU!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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