Still on that boat…

Strawberry blonde in a dizzy world!

So the new treatment begins…again

October13

Well, I’ve started the first part of the protocol that involves intravenous silver. Yes you heard right. When the Dr said IV silver I was thinking more like jewellery shopping. As my previous post alluded too he’s kind of eccentric so I did have to do a Google search before I signed up to it. I mean, I don’t want to end up looking like a Smurf – yes that is a possible side effect (well, a tiny exaggeration it can make you look a bit blue so same thing really!).

It’s actually very interesting. The Lyme spirichete acts very much like syphilis spiralling into your tissues. Back in the olden days (I’m talking pre iPhones, shell suits and even flares!) they used to use it to treat syphilis. In fact they did turn blue and have silver teeth – it was nicknamed ‘silver smile syphilis’!

So the silver runs directly into my blood and then penetrates deep into the tissues where the little buggers are hiding out causing me all this grief.

So there is logic behind the treatment. I’m slowly increasing the dose over the coming weeks. That’s because, just like antibiotics, it can cause a herx (die off reaction) so I need to be able to clear the toxins otherwise they will build up and make me very sick. The flip side is that it does not disturb the good bacteria in my gut, giving it a well earned rest after all the pounding I’ve given it with antibiotics.

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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