Still on that boat…

Strawberry blonde in a dizzy world!

The Rife machine

October20

Well, this is a therapy that I had come across a few times over my years of Google searching and kind of poo poo’d it as hocus pocus. I mean I’m all for trying out alternative therapies but seriously? This guy from almost a century ago curing cancer? How is this not big news if it were true?

However, I’d agreed to go the holistic route and in for a penny in for a pound. It was invented by Royal Rife in the 1930’s and he speculated that everything vibrates at it’s own specific frequency. On the basis that everything has it’s own resonant frequency he developed a machine that generates resonance waves that can target a specific pathogen. So some frequencies target cancer cells were as others target pathogens such a Lyme.

So, I couldn’t really turn down the opportunity to try it at the clinic where I’m being treated. I have to say I was pretty intrigued. You sit under what feels like a neon light when the bulb needs changing (hmm maybe it did?). The machine is tuned into the frequency of the Lyme and it’s co-infections and you lay there until your time is up. Laying down and not having any invasive procedures or drugs with nasty side effects was a rather novel experience for me. It was quite enjoyable, so much so that I fell asleep. So I don’t know what I was nervous about. There was no chance of this therapy turning me into a blue Smurf like the silver…or was there?

I was able to do the silver treatment at the same time as the Rife. Multi tasking on treating Lyme sounds like a good idea to me. I was such a good girl I got a matching bandage!

I’m still totally exhausted and spend my time that I’m not asleep or at the clinic trying to detox as much as possible. I’ve not seen much of America apart from the clinic and two isles of WholeFoods (now that was a disaster!) so I’m hoping that I’ll manage to get out and about a bit more at some point.  You never know with this illness. It’s all been a real learning curve that’s for sure!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

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