Still on that boat…

Strawberry blonde in a dizzy world!

The Welsh CTF work out

October13

Well, courtesy of my ‘fairy’ step mother and her lovely husband I am now on a new journey and it’s exciting. The treatment is VERY different but lets face it, the conventional treatment has got me no where, well, just much worse than when I started. The vertigo and fatigue has been so so bad. The boat is just about settling down but only when I’m really well rested and not moving much. I had one of my ‘episodes’ when I tried to leave the house and a day where I was hanging onto my bed for dear life as the rocking was so bad I was trying not to be sick. Not fun!

It’s a twelve week course (not quite sure what to do when my visa runs out) and I started this week. It wasn’t the best of starts when the doctor running the clinic seemed a bit barmy. We now all refer to him as Dr Nutty. It seems like that was an unfair first impression he’s just a doctor with zero people skills, has no regard for patient confidentiality and doesn’t like to be asked questions. Sounds terrible I know but I’ve tried all the other kinds of doctors and that’s not worked for me. I don’t need someone to hold my hand I need someone to get me better. Time for a 180!

Please, please let this work:

I can assure you that is not a smile:

To prepare for my upcoming fun and games Andrew has started me on a ‘light’ Lyme exercise regime. He has researched the matter and found that one day of light resistance exercised and the next day of absolute rest is the way to go. Light ha! It’s called the ‘Cut To F**k Workout’ (patent pending and not my name for it!). Damian the Pilates instructor just about killed me. ‘Light’ my arse. I could hardly lift up my arms the next day. I knew I was in trouble when I woke up and had difficulties brushing my teeth. Don’t ask me what it was like trying to take my jumper off at the end of the day – almost had to sleep in the bloody thing!



It’s been really fun though and I clearly needed it. The exercise should get the lymphatic system flowing and allow it to get rid of all the nasty bugs and break down products that are in my body. So, a new chapter in my Lyme journey. Here goes nothing, well if my body can still get me to the clinic that is 😉

 

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2 Comments to

“The Welsh CTF work out”

  1. Avatar October 13th, 2018 at 3:34 pm Emma Says:

    Looks hardcore! Good luck with the new approach. I look forward to the updates! X
  2. Avatar October 13th, 2018 at 3:49 pm Susan Cartwright Says:

    Thanks Emma. It will either kill me or help – only time will tell. I’m just so unconditioned I get out of breath even walking up the stairs. So even if I did get better I’d struggle. It’s very hard to get the balance right. Too much exercise puts me in bed for days so it’s tricky. xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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